Most recently I had the privilege of walking alongside my mother, who lived with Lewy Body Dementia, during her end-of-life journey.

Over six years, we navigated multiple transitions—from her home, to a condo, and eventually to supportive living, as her needs evolved. Despite inevitable challenges, she completed her life journey with grace and dignity.

As my mother’s chief navigator, I drew upon my background as a former Licensed Practical Nurse, and my professional experience as a small business accounting consultant. Together, these experiences provided a strong foundation for navigating complex systems, understanding financial and government documentation, and—most importantly—engaging in difficult yet necessary conversations with clarity and compassion.

My lived experience is also shaped by significant loss. I have supported loved ones through end-of-life journeys involving COPD, congestive heart failure, cancer, and Crohn’s disease, as well as experienced sudden and traumatic loss.

Through these experiences, I have learned that when death comes slowly, the journey can be meaningful and even beautiful—but it does not happen by accident. It requires early planning, honest conversations, collaboration, and adaptability.

When dementia is part of the journey, planning needs to begin well before death feels imminent, while individuals can still clearly express their wishes and values.

For my mom, taking a palliative approach from the time of diagnosis was key. Every decision was made with her best interests at the centre. The support and guidance I provided as her navigator reflect the work of an end-of-life doula.

PalliativePathways.ca and my end-of-life doula certification have been a labour of love, inspired by those I have had the privilege of walking alongside.

My hope is that the information shared here will be helpful as you navigate your own unique and beautiful journey.

Wendy Kinsman